Welcome to the Working Group on Neurocritical Care Informatics

Imagine!

You have just discharged your TBI patient.  A comprehensive record of their care (high-resolution physiology, nursing care, therapeutic interventions, medical record data, and images) has been automatically cleaned, annotated, and stored in a database that can be mined to help manage the next patient you see.  During the course of the patient’s stay you received real-time indications of their status, predictions of their course, and guidance to provide individualized care.

Our mission is to accelerate the creation of the above scenario by developing a “connected environment” in neurocritical care. The benefits include precision management, improved patient safety, lower costs, better outcomes, and cost-efficient clinical trials.  Our end point is the development of a new, more meaningful, medical record for the brain; one that can predict the patient’s course and optimize their management. Along the way a set of products, open source tools, and data sets will be developed to accelerate future work.

The Project and Plan

Our initial project is funded by the U.S. Department of Defense to create the data infrastructure and tools to create a new medical record for the brain that will enable precision management.  The expectation is that follow-on funding will leverage our initial work to explore more targeted clinical questions, develop more open source tools and analytics,  as well as create an annotated database for neurocritical care.

There are many projects and organizations addressing issues with connectivity in healthcare.  Our goal is not to duplicate these efforts rather to ensure they address the needs of neurocritical care and to fill in the gaps where they do not.

How to Use this Website

Anyone can view our progress via the documents in the Work Products section.  Stakeholders can review and comment on our work.  Developers are actively working on technology to meet the needs of the project.

A companion website is being used specifically for standards development.  See www.bedsideinfo.org.

How to Join our Project

To join our project send an email to [email protected]  Include your name, affiliation, and a few sentences on your experience related to our mission.